Doctors and Patience

Yesterday I had the pleasant adventure of taking my youngest daughter to the doctor. Since Danika has Down Syndrome, she has about 43 doctors, so I will further specify that I took her to the Endocrinologist. It was found when Danika was in the NICU that she had boarder-line hypothyroidism. This is a common issue among people with DS and can cause people to become over-weight... because people with Down Syndrome need a few extra challenges, right?

There are not very many Endocrinologists out there currently, and I called no less than ALL of the ones in the Dallas/Fort Worth areas to try to find one that both took our insurance AND had an opening before 2009.

After hours on the phone, I succeeded in finding a doctor at Children’s Medical Center in Dallas (not to be confused with Medical City Children’s or Medical City Dallas Children’s). They had an opening for June 20,2007. At the time I placed the call, it was January something, 2007, so I gladly took the appointment and wrote it into my 10 lb. 2007 – 2009 calendar.

The big day finally arrived yesterday. My middle child, who is a very precocious four-year-old, was going to have to come too as I can’t afford someone to watch her. (I’m afraid K.C. requires hazard pay to entice would-be babysitters to take such a risk.) I was quite proud I had everyone up, dressed, fed and ready to go out the door by 11:30 AM to get to our 12:45 appointment down-town.

Along the way I decided to stop at a fast-food place to pick up some lunch. I dutifully asked my four-year-old what she would like and was quite surprised when she stated “Nothing! I’m full!”

“But this is MacDonald’s! Are you SURE you don’t want anything?”
“Yes, I’m sure, mommy.”
“OK…”

I placed my order and pulled around to the window to pay.
“I want a chocolate milkshake!” a small voice whined from the back.

Thankfully the lady at the window was able to tack on this last minute health-food item as I paid.

After sitting in stop and go traffic for an hour, we arrived at CMCD (the hospital) only 5 minutes late. Hooray. I pulled into the incorrect parking lot, stopped to stare at the map I’d been sent by the doctor’s clinic, determined that the names of the streets on the map were not actually POSTED anywhere, turned the minivan around, made a U-turn at the next light and made an illegal left turn into the correct parking lot.

Jogging with a Graco Stroller and a whiny four-year-old is not as easy as it looks. It didn’t help that the outside temperature was 94 degrees. Another four degrees and I’d have been jogging through a rock group. After narrowly missing being hit by the Valet in a Hummer, we made it safely into the lobby.

We rode the elevator up to the fourth floor with my four-year-old crying the whole way because I’d forgotten to let her push the floor button. We disembarked from our elevator and found the check-in desk whereupon my four-year-old (henceforth known by her name of K.C.) announced she had to go potty. I checked in at light speed and we made it to the public bathroom just in the nick of time.

After leaving the restroom with wet hands and some soap dribbling down the side of the stroller, we located the doctor’s suite and were handed a mountain of paperwork to fill out. The nurse was already calling us to go back, so I would just have to fill out the paperwork on the run. The cup-holder trays on Graco strollers make for a great mobile desks in a pinch.

Danika was weighed, measured and her blood pressure was taking. I’m happy to announce her blood pressure was FAR better than mine was at that moment. We were then escorted to an exam room and sat down to wait for the doctor.

The doctor opened the door just in time to witness the existential ballet production by K.C. who was sailing across the room superman style atop the doctor’s stool. Pick your battles, moms – it’s this or whining.

The doctor read over Danika’s records, asked two questions and sent us down to the Lab for blood work. I’ll admit I was somewhat let down with this 4 minute visit after all my efforts. We packed up the stroller and made our way back out to the lobby where I handed the desk nurse my sloppily filled out paperwork.

After riding the elevator in which K.C. got to press the floor button, we stepped off back on the ground floor and wandered over to the Lab. In the empty lobby I was handed a paper with the number 27 on it. 27 out of what? We waited amongst the 26 invisible patients until the technician returned from a snack break and called our number.

No veins were readily noticeable in Danika’s plump baby arm, so the nurse chose to stick her finger instead. Had the finger belonged to my four-year-old, the crying would have been heard through the hospital. As it was Danika’s finger, she looked a bit surprised and then sat quietly as her tiny finger was milked for the next 20 minutes. In the mean time, K.C. was checking out all the stickers and pencils on the counter. She decided that Danika wanted the bubbles in the green bottle, and happily liberated those and a few stickers from the large glass jar in which they were neatly contained.

Then back to the car. Opening a car door on a 94 degree day is much like sticking one’s head in the oven. I felt much like the witch from Hansel & Gretel placing each of my beautiful children into the sweltering, metallic vessel and strapping them into their child “safety” seats. How safe will my children be if they are cooked before anyone has a chance to sideswipe us?

Taking a chance, I started the ignition and set the A/C on full blast, then walked back to the stroller and began collapsing it. I could just see the news reports of the car jacking in Dallas. One child would be found minutes later by the side of the road (nobody but mom can stand her whining for much longer than that) and the quiet one missing until someone realized she was still in the van when they were dismantling it. No doubt they would be met with a wide, toothless smile and two chubby hands beckoning to be picked up and hugged.

When I finally arrived home in the evening, I wondered how it was that one four minute doctor’s appointment could take up so much of my life. I estimate the total time of calling, waiting, driving, traffic, and labs to be about 6 months, 14 days, 6 hours… oh… and four minutes!

Chapter… whatever

So, pregnancy was as smooth as sandpaper with nails sticking through it and encrusted in broken glass. By some miracle my boss was very understanding of my little life-altering surprise and allowed me to take on the lower-stress position of Bill Collector/Bounty Hunter/Call People and Bitch at Them. We shortened the title to Collections though honestly I prefer Goddess of Company Wealth.

Though the position was far different from any other I’d ever held, I actually wasn’t bad at it. The company was small but growing, and the Collections area needed a creative makeover. It was actually quite fun figuring out where all the problems were and finding creative solutions for them. I think I even surprised myself with some of the major changes I made in inter-company communications (I knew that degree would come in useful some day).

As my belly grew, so did my job responsibilities and, oh yeah, my blood pressure. High blood pressure is a bad thing when one is not pregnant. When pregnant, it’s like an evil mother-in-law taking up residence in the room right next to the master suite… on the headboard side of the wall. Though I did my best to take it easy, the numbers on my home blood pressure monitor climbed steadily. By 20 weeks my doctor wanted me to stop working. Of course I stopped working immediately. Immediately after the tenth of the next month. First he throws Prunes at me and then he acts like paychecks grow on trees. What was up with this doctor?

At 28 weeks of pregnancy I made the mistake of going in for a routine fetal non-stress test. The “bun” proved to be doing just fine, but the “oven” was getting a little too hot. The staff would not even let me go out to the parking lot to grab a pre-packed suitcase from the trunk of my car. I was given one of those lovely fanny emphasizing robes that ties in the back, and being 28 weeks pregnant I had to have help with those poorly-placed low-tech fastening devices.

Taking up temporary residence in the hospital was an experience. There’s nothing like sleeping on a plastic-covered mattress loosely covered with one thin sheet in the one ward of the hospital that is kept extra warm. Finding a comfortable position while pregnant is hard enough without attempting to stuff a plastic pillow between your knees for hip support. I was given the option of laying on my left side or getting repeatedly reprimanded for shifting to my right side when my left side became sore. By day two my old back injury was acting up, and by day four I called one of my best friends who happens to be a Chiropractor to come “visit” me. I felt so much better by the time she left that my blood pressure went down to 150 over 98 for an hour or two.

By Sunday, August 6^th my blood pressure was back up just a bit. My doctor seemed to think 168 over 112 was a bad thing. He asked me to call my husband and to be ready to go into surgery in the next hour. (And he thought my blood pressure was high before?)

I grabbed my cell phone and called my hubby’s number. No answer. I called his other phone. No answer. I called the first number again and almost started to freak. As I was about to try the number again I received a text message that simply said, “HOLD ON!” I was about to get wheeled in to have a baby, and he put me on HOLD behind an “important” phone call!

I did the only thing a woman who’s not allowed to get out of bed could do. I called some friends and told them to go kick my hubby’s ass. Well, I did mention I was about to have the baby, and they said they would drive right over to our house and get him if necessary. Luckily when they called his phone, he saw it wasn’t me and answered. Needless to say I got some good apologies after that cute stunt.

Though I’d had two needles in the spine before for my other two c-sections, the third time was not the charm. Though the area was supposedly numbed with Novocain, I could still feel it just fine. I love it when they say “you’re going to feel a little pressure…” Pressure my butt! That HURT! On top of that I could feel the needle going to the left of the centered target. By the time I was on the operating table I was numb from the torso down, but my blood pressure was higher than ever. In fact after the whole ordeal was done, Dr. Prune confided that he’d never seen blood pressure that high in someone with an epidural. He was actually worried I’d arrest during the surgery. I love hearing delightful tidbits like that.

I’d love to tell you every detail about the surgical experience that day, but I had been put on a Magnesium drip to prevent seizures. For those of you lucky enough to never have experienced high volumes of Magnesium infusing the bloodstream, it’s a unique experience that is somewhat comparable to being seasick while on a bad acid trip. I’ve never tried acid, but I’ve heard stories. I have now actually seen the walls breathe. I vaguely remember the anesthesiologist on my right saying “Put your arm down. Can you hear me? Please put your arm back down.” Huh? What arm? At the time I had no earthly idea what he was talking about, but I am guessing that one of the side effects of Magnesium is arm levitation.

The only clear memory I have is seeing my beautiful 2 lb. 7 oz. daughter being wheeled out in a small, plastic cart. She was pink and breathing on her own. She was absolutely beautiful. And that’s when the anesthesiologist gave me the good stuff.

I woke up (somewhat) in the recovery room. Generally at this point new mothers are wheeled to the Post-Partum ward, but they were too afraid to move me very far. In fact I was put in the room directly across the hall from the recovery room. I remember very little about the next two days. I know I was longing to see my tiny daughter, but neither she nor I could be moved. When my blood pressure was finally a little lower and the walls had stopped breathing, I was wheeled in a stretcher to the NICU (Neonatal Intensive Care Unit). Though Danika was tiny, she was doing better than we had dared to hope. I was even allowed to hold her for a minute before being taken to my new room in the Post-Partum ward.

Just as my blood pressure was coming under control, a doctor from the NICU came to my room and excitedly announced to me that she thought my daughter had Down Syndrome. Thanks lady! That was just the medication I needed to insure a swift and stress-free recovery from the wild ride from which I’d just disembarked.